So funny story, true story: I applied for the job as my church’s secretary. Stop laughing, that’s not supposed to be the funny part. Okay, it kind of is.
It has been a bit tricky to pay our bills lately so the position opening seemed like manna from heaven, so to speak. And I perfectly qualify in every way to be the church office assistant EXCEPT Continue reading
A friend asked me if I follow a special diet or exercise regimen for MS. Which makes me do a little side-eye..
“Are you asking so as to know what NOT to do?”
Well. Since I’m CLEARLY beating the odds and am a picture of near-perfect health… 😂 Continue reading
How people respond to my life story so far is fascinating. Truly is. I kind of touched on it in ‘Those Who Get It’ – I consider myself fortunate to have a disability that naturally seems to bring out the best in the people who often then become my dearest friends.
Others among you are a little hung up on the ‘disabled people are inspirational’ narrative which truly, I can’t blame you. Our society defaults to it, we see examples all the time, and it seems lovely.
However, as with many things in life, the Continue reading
Today’s topic is accessible parking, also known as handicapped or disabled parking.
Disclaimer: just because I’m the opposite of private here doesn’t mean I go around sharing everything at all times. First of all there is a lot that I don’t share (no, for real) and secondly if somebody clearly doesn’t know my backstory already then I’m not required to share it.
Yes, I have an accessible parking permit. Some may be surprised to learn that I am not required to appear sick in order to use it. Continue reading
Backstory: This was in the summer of 2016. I worked most days – the girls – Hannah, 12 years old and Caitlin, 5 years old, went to their grandparents (my parents) while I was at work. An aide from a local agency would come and pick up our autistic oldest son.
Jacob’s aide walks in the door: “Good morning!”
Caitlin: “I fell off a grocery cart and I have a bruise! See? Continue reading
Realistically, I traded my ability to run or walk well for another daughter.
Totally worth it, I would do it again in a heartbeat (read more on that in my previous blog post here).
That being said, I have pretty much said goodbye Continue reading
(If you haven’t read them yet – here are the links to Part 1 and Part 2)
Spring 2010: When I Was ‘That’ Patient
My new neurologist, Dr. Bakker, is literally quite lovely and not that much older than I am. Between her and her nurses Bonnie and Shivaun I knew I was in good hands.
First appointment: Continue reading